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My ASD Princess

A family helping a girl explore her world through the lens of autism

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school

My Princess, Always Amazing Me

“I’m not blaming my autism for anything I’m proud that I have autism and it doesn’t matter if I do stuff differently that’s okay, nobody is normal if you think your normal maybe you don’t know what the definition of normal and different mean because if everybody was normal life would be real crappy. God made everybody different for a reason in brace your differences”

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One Tough Princess

I've been learning not to focus on the 30 hours of school she doesn't attend per week or the endless juggling of multiple allied health and medical appointments. Even further the constant seesaw of medication changes, self-harm, overstimulation, fighting and misunderstanding. If this becomes our focus and measure stick, I would feel defeated and fighting a lost battle. Instead, I've been determined to notice these huge milestones these past months that demonstrates a positive movement forward;

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2017 has been a tough year

Upon reflection, we have concluded that this year has been the most tumultuous and difficult for our princess and as such for us. We had high hopes for her first year of high school, a timetabled and predictable space, others in her class with similar struggles and specialists that could walk alongside her.

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High School – Unpredictable, Harsh, Damn Hard Work.

Our dreams of inderpendance, a life away from mum and dad, a career, family and life long friends seem unabtainable and that's gut wrenching, painful and a scary future that each day I try and push away refusing to accept and I continue to help her dream, push her farther and again try a new strategy to get through a somewhat normal predictable day.

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Take 3

Although the cost of academia was a reduction in supports; this was disastrous for our princess. The progress of the first semester was lost, the wins on her report card forgotten, but more disastrously the want to engage and even attend school has been lost.

Learning to Push Harder

It's been a while between drinks, but here we go my latest instalment. After seven days in the hospital, one month at home and numerous medical appointment I'm on the mend. But it's taken its toll on my princess. This blog forms an update of the last 90days, a crazy 90 days of learnings, frustrations, healings and for my princess a time of much-needed pushing.

Autism and Sickness = Sucky Times

I am starting to believe that we may never truly adjust to this diagnosis. However, we now have a far better understanding of Jenna, the fluid nature of ADS. We have learned that autism is an ever changing lifelong diagnosis and sometimes a challenge for us all.

What About The Other 3

To say "Its been a tough holiday period for the princess" would be an understatement.The normality of school, bedtime, packed lunches and her gymnastic lessons create a rhythmic stability for her

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Stop looking at my daughter

It's easy to teach, discipline and model the correct and expected behavior for our own family. Although we have been really taken a hit this past few weeks from others (mostly complete strangers.)

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