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My ASD Princess

A family helping a girl explore her world through the lens of autism

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Only been given half the diagnosis, and half the answers.

Last week I had a daughter with autism (level 2) this week I have a daughter with a suite of disabilities that are fighting for a front row seat, in her every day. A child that I thought saw the world through the single lens of autism,  now viewing life through a multiple lenses mixing anxieties, depression, and social phobias blurring her reality and messing with what we thought was her normal.  So I am hurting because my daughter hurts, but I'm also angry because my daughter hurts. When your daughter has only been giving half the diagnosis, it means we've just been treating a symptom, not the cause.

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What A Month

January was a tough month in the household. The family moving in together after six months apart was taxing for all. Jenna's three siblings found life difficult to adjust to 24/7 Jenna. In turn, Jenna was far more accustomed to... Continue Reading →

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Take 3

Although the cost of academia was a reduction in supports; this was disastrous for our princess. The progress of the first semester was lost, the wins on her report card forgotten, but more disastrously the want to engage and even attend school has been lost.

Learning to Push Harder

It's been a while between drinks, but here we go my latest instalment. After seven days in the hospital, one month at home and numerous medical appointment I'm on the mend. But it's taken its toll on my princess. This blog forms an update of the last 90days, a crazy 90 days of learnings, frustrations, healings and for my princess a time of much-needed pushing.

OT – the next chapter begins for our Princess

What a whirlwind of a month.... We have started yet another therapy journey for Jenna, and its been a fantastic eye opener for us all. The next chapter has unlocked some permission for our princess, and we have seen an... Continue Reading →

Autism and Sickness = Sucky Times

I am starting to believe that we may never truly adjust to this diagnosis. However, we now have a far better understanding of Jenna, the fluid nature of ADS. We have learned that autism is an ever changing lifelong diagnosis and sometimes a challenge for us all.

What About The Other 3

To say "Its been a tough holiday period for the princess" would be an understatement.The normality of school, bedtime, packed lunches and her gymnastic lessons create a rhythmic stability for her

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My Princess (insert label) ASD + ADHD girl

Getting it wrong for the past 5 years I asked myself these questions: Did that lesson my abilities as a Dad? I missed the signs for Jen, what else have I missed? What did I do wrong? Why did I miss all the signals?

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