No clue about what Autism is? Neither did we. Until we spoke with Jeramy Hope. He is dedicated to Autism Advocacy and is working hard to bring more awareness on the topic. This episode also has a special ending. Jenna Hope shared with us what to do if you've discovered you have autism.
Upon reflection, we have concluded that this year has been the most tumultuous and difficult for our princess and as such for us. We had high hopes for her first year of high school, a timetabled and predictable space, others in her class with similar struggles and specialists that could walk alongside her.
Our dreams of inderpendance, a life away from mum and dad, a career, family and life long friends seem unabtainable and that's gut wrenching, painful and a scary future that each day I try and push away refusing to accept and I continue to help her dream, push her farther and again try a new strategy to get through a somewhat normal predictable day.
Pre-diagnosis a few year's ago we needed to make a decision. Do we go on waiting lists, accept the initial diagnosis and carry on, or do we go "private"
Next became a bigger problem... the constant in Jenna's life the past 6 years has been a school. School, for the most part, has been predictable, structured and problem free. In what seemed overnight we went from going to school daily, to non-attendance
To say "Its been a tough holiday period for the princess" would be an understatement.The normality of school, bedtime, packed lunches and her gymnastic lessons create a rhythmic stability for her
It's easy to teach, discipline and model the correct and expected behavior for our own family. Although we have been really taken a hit this past few weeks from others (mostly complete strangers.)
Getting it wrong for the past 5 years I asked myself these questions: Did that lesson my abilities as a Dad? I missed the signs for Jen, what else have I missed? What did I do wrong? Why did I miss all the signals?