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My ASD Princess

A family helping a girl explore her world through the lens of autism

My Princess, Always Amazing Me

“I’m not blaming my autism for anything I’m proud that I have autism and it doesn’t matter if I do stuff differently that’s okay, nobody is normal if you think your normal maybe you don’t know what the definition of normal and different mean because if everybody was normal life would be real crappy. God made everybody different for a reason in brace your differences”

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One Tough Princess

I've been learning not to focus on the 30 hours of school she doesn't attend per week or the endless juggling of multiple allied health and medical appointments. Even further the constant seesaw of medication changes, self-harm, overstimulation, fighting and misunderstanding. If this becomes our focus and measure stick, I would feel defeated and fighting a lost battle. Instead, I've been determined to notice these huge milestones these past months that demonstrates a positive movement forward;

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Only been given half the diagnosis, and half the answers.

Last week I had a daughter with autism (level 2) this week I have a daughter with a suite of disabilities that are fighting for a front row seat, in her every day. A child that I thought saw the world through the single lens of autism,  now viewing life through a multiple lenses mixing anxieties, depression, and social phobias blurring her reality and messing with what we thought was her normal.  So I am hurting because my daughter hurts, but I'm also angry because my daughter hurts. When your daughter has only been giving half the diagnosis, it means we've just been treating a symptom, not the cause.

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2017 has been a tough year

Upon reflection, we have concluded that this year has been the most tumultuous and difficult for our princess and as such for us. We had high hopes for her first year of high school, a timetabled and predictable space, others in her class with similar struggles and specialists that could walk alongside her.

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High School – Unpredictable, Harsh, Damn Hard Work.

Our dreams of inderpendance, a life away from mum and dad, a career, family and life long friends seem unabtainable and that's gut wrenching, painful and a scary future that each day I try and push away refusing to accept and I continue to help her dream, push her farther and again try a new strategy to get through a somewhat normal predictable day.

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What A Month

January was a tough month in the household. The family moving in together after six months apart was taxing for all. Jenna's three siblings found life difficult to adjust to 24/7 Jenna. In turn, Jenna was far more accustomed to... Continue Reading →

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Public or Private

Pre-diagnosis a few year's ago we needed to make a decision. Do we go on waiting lists, accept the initial diagnosis and carry on, or do we go "private"

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Thank you for Being Brave

Daddy wants to write you a letter and say thank you. Thank you for asking questions Thank you for adapting and embracing your autism diagnosis Thank you for being proud of who you are Thank you for teaching me to... Continue Reading →

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The princess makes her dad proud, again…..

Next became a bigger problem... the constant in Jenna's life the past 6 years has been a school. School, for the most part, has been predictable, structured and problem free. In what seemed overnight we went from going to school daily, to non-attendance

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What About The Other 3

To say "Its been a tough holiday period for the princess" would be an understatement.The normality of school, bedtime, packed lunches and her gymnastic lessons create a rhythmic stability for her

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Stop looking at my daughter

It's easy to teach, discipline and model the correct and expected behavior for our own family. Although we have been really taken a hit this past few weeks from others (mostly complete strangers.)

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My Princess (insert label) ASD + ADHD girl

Getting it wrong for the past 5 years I asked myself these questions: Did that lesson my abilities as a Dad? I missed the signs for Jen, what else have I missed? What did I do wrong? Why did I miss all the signals?

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We Continue to Fight

We are for the first time trying to understand the complexities of the comorbidity of our princesses mental health diagnosis and autism.

LOVE, My Gift to our Princess.

I have been reflecting on love. Both how my princess shows this and how we ensure she feels and understands love. Like many ASD kids, my princess has trouble showing any affection. As an example, the rarity of hugs is... Continue Reading →

Sea Change

We are bound for a sea change. After four months apart we are finally back together and in one place (with the exception of the oldest who is travelling) The family has packed its bags and left our city home... Continue Reading →

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