Search

My ASD Princess

A family helping a girl explore her world through the lens of autism

Category

specialist

We Continue to Fight

We are for the first time trying to understand the complexities of the comorbidity of our princesses mental health diagnosis and autism.

Only been given half the diagnosis, and half the answers.

Last week I had a daughter with autism (level 2) this week I have a daughter with a suite of disabilities that are fighting for a front row seat, in her every day. A child that I thought saw the world through the single lens of autism,  now viewing life through a multiple lenses mixing anxieties, depression, and social phobias blurring her reality and messing with what we thought was her normal.  So I am hurting because my daughter hurts, but I'm also angry because my daughter hurts. When your daughter has only been giving half the diagnosis, it means we've just been treating a symptom, not the cause.

Featured post

High School – Unpredictable, Harsh, Damn Hard Work.

Our dreams of inderpendance, a life away from mum and dad, a career, family and life long friends seem unabtainable and that's gut wrenching, painful and a scary future that each day I try and push away refusing to accept and I continue to help her dream, push her farther and again try a new strategy to get through a somewhat normal predictable day.

Featured post

What A Month

January was a tough month in the household. The family moving in together after six months apart was taxing for all. Jenna's three siblings found life difficult to adjust to 24/7 Jenna. In turn, Jenna was far more accustomed to... Continue Reading →

Featured post

Learning to Push Harder

It's been a while between drinks, but here we go my latest instalment. After seven days in the hospital, one month at home and numerous medical appointment I'm on the mend. But it's taken its toll on my princess. This blog forms an update of the last 90days, a crazy 90 days of learnings, frustrations, healings and for my princess a time of much-needed pushing.

Public or Private

Pre-diagnosis a few year's ago we needed to make a decision. Do we go on waiting lists, accept the initial diagnosis and carry on, or do we go "private"

Featured post

Staples , extraction and sport 

We learnt some hard life lessons these past seven days. Brushing my teeth feels gross but if I don't I lose them. Misjudge somersaults in the pool messes with your head (literally). Friends don't stay friends forever when your ten... Continue Reading →

OT – the next chapter begins for our Princess

What a whirlwind of a month.... We have started yet another therapy journey for Jenna, and its been a fantastic eye opener for us all. The next chapter has unlocked some permission for our princess, and we have seen an... Continue Reading →

Autism and Sickness = Sucky Times

I am starting to believe that we may never truly adjust to this diagnosis. However, we now have a far better understanding of Jenna, the fluid nature of ADS. We have learned that autism is an ever changing lifelong diagnosis and sometimes a challenge for us all.

Powered by WordPress.com.

Up ↑

%d bloggers like this: