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My ASD Princess

A family helping a girl explore her world through the lens of autism

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autism

My Princess, Always Amazing Me

“I’m not blaming my autism for anything I’m proud that I have autism and it doesn’t matter if I do stuff differently that’s okay, nobody is normal if you think your normal maybe you don’t know what the definition of normal and different mean because if everybody was normal life would be real crappy. God made everybody different for a reason in brace your differences”

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One Tough Princess

I've been learning not to focus on the 30 hours of school she doesn't attend per week or the endless juggling of multiple allied health and medical appointments. Even further the constant seesaw of medication changes, self-harm, overstimulation, fighting and misunderstanding. If this becomes our focus and measure stick, I would feel defeated and fighting a lost battle. Instead, I've been determined to notice these huge milestones these past months that demonstrates a positive movement forward;

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We Continue to Fight

We are for the first time trying to understand the complexities of the comorbidity of our princesses mental health diagnosis and autism.

Only been given half the diagnosis, and half the answers.

Last week I had a daughter with autism (level 2) this week I have a daughter with a suite of disabilities that are fighting for a front row seat, in her every day. A child that I thought saw the world through the single lens of autism,  now viewing life through a multiple lenses mixing anxieties, depression, and social phobias blurring her reality and messing with what we thought was her normal.  So I am hurting because my daughter hurts, but I'm also angry because my daughter hurts. When your daughter has only been giving half the diagnosis, it means we've just been treating a symptom, not the cause.

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2017 has been a tough year

Upon reflection, we have concluded that this year has been the most tumultuous and difficult for our princess and as such for us. We had high hopes for her first year of high school, a timetabled and predictable space, others in her class with similar struggles and specialists that could walk alongside her.

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High School – Unpredictable, Harsh, Damn Hard Work.

Our dreams of inderpendance, a life away from mum and dad, a career, family and life long friends seem unabtainable and that's gut wrenching, painful and a scary future that each day I try and push away refusing to accept and I continue to help her dream, push her farther and again try a new strategy to get through a somewhat normal predictable day.

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LOVE, My Gift to our Princess.

I have been reflecting on love. Both how my princess shows this and how we ensure she feels and understands love. Like many ASD kids, my princess has trouble showing any affection. As an example, the rarity of hugs is... Continue Reading →

What A Month

January was a tough month in the household. The family moving in together after six months apart was taxing for all. Jenna's three siblings found life difficult to adjust to 24/7 Jenna. In turn, Jenna was far more accustomed to... Continue Reading →

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Sea Change

We are bound for a sea change. After four months apart we are finally back together and in one place (with the exception of the oldest who is travelling) The family has packed its bags and left our city home... Continue Reading →

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