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My ASD Princess

A family helping a girl explore her world through the lens of autism

Month

December 2015

Autism presents

12 months on after diagnosis and we are still learning, getting it wrong and trailing new strategies and tactics.

Balancing between our princess’ “normal” and what society expects normal to be.

We often get the balance wrong and this often brings spectators, disagreeing looks and unimpressed gazes about our parenting choices.

To get this balance right and to continue to “go outside” we developed (with the assistance from various therapists) many strategies and tools to assist our princess. I thought I’d share a few.

A literal bag. 

In this bag we have:

  • noise canceling headphones
  • slime or therapy putty
  • fidget toys
  • note pad and paper
  • change of clothes
  • baby doll (with a change of clothes)
  • iPad 

This bag is a life saver, buying us time and proving a different focus for the princess when the ‘outside’ gets to hard.

Space

(that is giving our princess time to reset, process the day and to have time alone)

It takes a lot of planning to go on an outing and a normal part of the routine and event is ‘down time’ although not a favorite part of the trip for the other 3, this is vital time to ensures we  can have an extended play or activity.

Trips on trams, walking in crowded spaces and loud noises all cause over stimulation and anxiety. The key is for us to pick up on the triggers early and redirect or utilize some of our tools. i.e. headphones to take the focus away for the object or thinking causing the anxiety.

 

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using slime and headphones to relax

Independence and Choice

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Our princess has her own style and is extremely unique. We want to assist Jenna to embrace her own reality and explore what it means to be her. That is even if this included an outfit as a skating ballerina in a tutu whist shopping.

Time with Dad

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We love exploring and taking adventures to new and exciting places. This is a picture of our latest trip and although she found it difficult for in the crowds and noise. It was a fantastic day had by all.

Trying new things

Although, she would never admit it she loves her big sisters and wants to be like them. This involves trying new things and exploring in ways that she normally would not. Her sisters help her stretch, dream and try new things. To this I am extremely grateful.

 

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Staples , extraction and sport 

We learnt some hard life lessons these past seven days.

  • Brushing my teeth feels gross but if I don’t I lose them.
  • Misjudge somersaults in the pool messes with your head (literally).
  • Friends don’t stay friends forever when your ten years old.
  • Weight gain is hard when you’re a girl.
  • Having house rules are helpful and painful at the same time.
  • Sport always sucks when you’re not the boss

But…. We got through it all, both of us are stronger and we have good strategies that will help us out far beyond these seven days.
Specialists, school teachers, family and new friends have brought a sense of calm and normality to our princess’ life finally finding momentum and a steady groove.

Since moving house, our princess is sleeping in her room at the right time every night. Mum and dad get their lounge room back and Jenna has a dedicated space to ‘chill’.

Bring on the holiday break and heaps of crazy fun as a family

 

ready for staples

 

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