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My ASD Princess

A family helping a girl explore her world through the lens of autism

Author

Jeramy Hope

My Story Living a full life with a Functional Neurological Disorder; I’m Jeramy, a husband, father of 4, an advocate for people with disability and a lifelong learner. I am passionate about mentoring and developing leaders. Have a love for the outdoors, long drives in the countryside and exploring our great country in our campervan with the family. I have chronic pain, intermittent orthostatic tremors and a functional neurological disorder. However, I try not to let this slow me down. I live a whole life; I work hard, play hard, and unless my body has forced me, I never stand still.

LOVE, My Gift to our Princess.

I have been reflecting on love. Both how my princess shows this and how we ensure she feels and understands love. Like many ASD kids, my princess has trouble showing any affection. As an example, the rarity of hugs is... Continue Reading →

What A Month

January was a tough month in the household. The family moving in together after six months apart was taxing for all. Jenna's three siblings found life difficult to adjust to 24/7 Jenna. In turn, Jenna was far more accustomed to... Continue Reading →

Featured post

Sea Change

We are bound for a sea change. After four months apart we are finally back together and in one place (with the exception of the oldest who is travelling) The family has packed its bags and left our city home... Continue Reading →

Hospital Stay

Very anxious princess tonight++++ Surgery booked for tomorrow afternoon for a -'COBLATION Tonsillectomy + Grommets +/- Adenoids + Nasendoscopy.' This is a repeat of the Grommets +/- Adenoids surgery from 4 years ago. We are hopeful that this will be... Continue Reading →

Take 3

Although the cost of academia was a reduction in supports; this was disastrous for our princess. The progress of the first semester was lost, the wins on her report card forgotten, but more disastrously the want to engage and even attend school has been lost.

Learning to Push Harder

It's been a while between drinks, but here we go my latest instalment. After seven days in the hospital, one month at home and numerous medical appointment I'm on the mend. But it's taken its toll on my princess. This blog forms an update of the last 90days, a crazy 90 days of learnings, frustrations, healings and for my princess a time of much-needed pushing.

Public or Private

Pre-diagnosis a few year's ago we needed to make a decision. Do we go on waiting lists, accept the initial diagnosis and carry on, or do we go "private"

Featured post

Autism presents

To get this balance right and to continue to "go outside" we developed (with the assistance from various therapists) many strategies and tools to assist our princess

Staples , extraction and sport 

We learnt some hard life lessons these past seven days. Brushing my teeth feels gross but if I don't I lose them. Misjudge somersaults in the pool messes with your head (literally). Friends don't stay friends forever when your ten... Continue Reading →

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