I’ve been ‘unwell’ in my current state since 2015/16, so seven years of not understanding the ‘WHY’ about my chronic pain, tremors, and functional neurological disorder. Therefore I needed to focus on one avenue to ensure some kind of normality for myself and my family. I’ve focused on pain management for the past seven years, getting my first pain specialist in 2016. My logic is that with effective pain management, I can live a somewhat normal life, continue working and mask whatever is going on with painkillers.
“I’m not blaming my autism for anything I’m proud that I have autism and it doesn’t matter if I do stuff differently that’s okay, nobody is normal if you think your normal maybe you don’t know what the definition of normal and different mean because if everybody was normal life would be real crappy. God made everybody different for a reason in brace your differences”
I've been learning not to focus on the 30 hours of school she doesn't attend per week or the endless juggling of multiple allied health and medical appointments. Even further the constant seesaw of medication changes, self-harm, overstimulation, fighting and misunderstanding. If this becomes our focus and measure stick, I would feel defeated and fighting a lost battle.
Instead, I've been determined to notice these huge milestones these past months that demonstrates a positive movement forward;
We are for the first time trying to understand the complexities of the comorbidity of our princesses mental health diagnosis and autism.
Very anxious princess tonight++++ Surgery booked for tomorrow afternoon for a -'COBLATION Tonsillectomy + Grommets +/- Adenoids + Nasendoscopy.' This is a repeat of the Grommets +/- Adenoids surgery from 4 years ago. We are hopeful that this will be... Continue Reading →
My ASD Princess 
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