“I’m not blaming my autism for anything I’m proud that I have autism and it doesn’t matter if I do stuff differently that’s okay, nobody is normal if you think your normal maybe you don’t know what the definition of normal and different mean because if everybody was normal life would be real crappy. God made everybody different for a reason in brace your differences”
I've been learning not to focus on the 30 hours of school she doesn't attend per week or the endless juggling of multiple allied health and medical appointments. Even further the constant seesaw of medication changes, self-harm, overstimulation, fighting and misunderstanding. If this becomes our focus and measure stick, I would feel defeated and fighting a lost battle. Instead, I've been determined to notice these huge milestones these past months that demonstrates a positive movement forward;
Upon reflection, we have concluded that this year has been the most tumultuous and difficult for our princess and as such for us. We had high hopes for her first year of high school, a timetabled and predictable space, others in her class with similar struggles and specialists that could walk alongside her.
It's been a while between drinks, but here we go my latest instalment. After seven days in the hospital, one month at home and numerous medical appointment I'm on the mend. But it's taken its toll on my princess. This blog forms an update of the last 90days, a crazy 90 days of learnings, frustrations, healings and for my princess a time of much-needed pushing.
I am starting to believe that we may never truly adjust to this diagnosis. However, we now have a far better understanding of Jenna, the fluid nature of ADS. We have learned that autism is an ever changing lifelong diagnosis and sometimes a challenge for us all.
Short post tonight...The little things , thank God for the little things.....Eating food at her request.Going to bed at the pre-arranged, agreed time.1:1 time at the park.Hanging out (even just for a minute) with her sisters.What a blessed weekend we... Continue Reading →
Much of our spare time is spent assisting her siblings understand the complexities of autism and trying to differentiate behaviors, meltdowns and 'just being a naughty kid.' We have had some little wins but all the 4 children have a point. At times it's not fair!
First day back at school for our princess, for that matter 3/4 of the tribe. Although this year has proven a bit trickier, more thought-out and planned the day itself was uneventful. The day started for Jenna at 5am and... Continue Reading →
Getting it wrong for the past 5 years I asked myself these questions: Did that lesson my abilities as a Dad? I missed the signs for Jen, what else have I missed? What did I do wrong? Why did I miss all the signals?
My ASD Princess 
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